Acknowledgements
NCDB would like to thank the following for their contributions to this report:
- Family Engagement Coordinator Peer Learning Community (FEC PLC)
- State deaf-blind project staff
- National Family Association for Deaf-Blind (NFADB), NFADB affiliate organizations, and NFADB ambassadors
- CHARGE Syndrome Foundation and CHARGE state family liaisons
- Global Foundation for Peroxisomal Disorders (GFPD)
- Usher Syndrome Coalition and Ava’s Voice
- Cornelia de Lange Syndrome (CdLS) Foundation and the CdLS regional coordinators
- Perkins International
And a special thanks to the following individuals who were part of the Process and Strategic Review Team for their leadership in researching, coordination, and facilitation:
Theresa Baldry, MT
Edgenie Bellah, TX
Molly Black, PA
Heather Dirks, IA
Ginger Knowles, HI
Patti McGowan, PA, NFADB
Lanya McKittrick, WA
Myrna Medina, CA
Rhonda Beach Tyree, Consultant
Jana Villemez, AR
Faith Young, IL